The LupusQoL consists of 34 items in eight domains. The number of items in each domain and the item numbers that refer to that domain are tabulated below:
The LupusQoL has a five-point Likert response scale as follow and the responses are scored as tabulated:
Each domain of the LupusQoL is scored separately.
- Calculate the mean raw domain score by adding up the item response scores for each domain and dividing this total by the number of items in that domain.
- Transform this mean raw domain score by dividing by four (the number of Likert responses [five] minus one) and then multiplying by 100, as below:
Mean raw domain score
------------------------------- x 100 = Transformed score for domain
Transformed scores range from 0 (worst HRQoL) to 100 (best HRQoL)
Transformed domain scores can be obtained when at least 50% of the items are answered. The mean raw domain score is then calculated by totaling the item response scores of the answered items and dividing by the number of answered items. A non-applicable response is treated as unanswered and the domain score calculated as above.
Time to Complete:
Patients typically completed the LupusQoL in less than 10 minutes.
The scoring and the transformation of the scores takes approximately five minutes.